One woman's stories, adventures, observations and rants, lived through and beyond metastatic breast cancer.
Monday, April 30, 2007
covered in slime
It's not just the unpleasantness of lying in a chilly room, covered in cold, goopy, gel.
It's not just the ugly robe and mind-numbing boredom of lying first on my back and then my sides, as I silently obey commands to, "Breathe in. Hold it. Breathe out."
What really gets to me is the fact that there is a screen right in front of me that I cannot interpret. A screen that has the answers to whether the tumours in my liver have grown larger. Or if they have started to invade elsewhere.
I hate that the ultrasound technician, a stranger, can interpret the images yet can tell me nothing.
I really hate ultrasounds.
I see the oncologist on Friday. I hope to have results by then.
Saturday, April 28, 2007
Drug companies are evil.
Thank goodness, once again, for socialized medicine.
And, boy, it costs a lot to keep me alive.
Friday, April 27, 2007
They had known each other for approximately twenty minutes, as we waited for a big enough table to be ready at Swiss Chalet. She was the manager's daughter and they had been chasing each other around the restaurant foyer.
After we were seated, she came to our table and said, "I wish I could sit beside him."
This kind of thing happens everywhere we go with D. I shudder to think what the future brings. Let's just hope he uses his charisma wisely.
Wednesday, April 25, 2007
the many faces of four
My baby turned four on Sunday.
Smart, sweet, confident, challenging D.
We watched video of him as a baby today. Even then, he sparkled, a child who knows he is beautiful and loved.
D. is opinionated, tyrannical, loving, adventurous and funny.
I can't believe he's already four.
Tuesday, April 24, 2007
whiskers on kittens
I came up with this list this morning:
my coffee mug
the smell of lilacs
dark chocolate dipped in coffee
soft, beautiful yarn made from natural fibers
greg brown's voice
the back of my sons' necks
What would be on your list?
Monday, April 23, 2007
I was early.
Three days early.
Chemo is eating my brain.
Friday, April 20, 2007
ending better than it started
Found out someone used my credit card number and forged my signature on a Visa cheque for almost two thousand dollars. The cheque was returned as NSF. Thank goodness we've been spending beyond our means or the fraud might have been successful. As it is, we've had to cancel our credit card and wait for a new one to be sent to us.
Appointment with my radiation oncologist.
I was first examined by a medical student, who asked, sounding alarmed, "How long have you had this lump?" I panicked for a moment, then realized she was referring to my Portacath (shouldn't she have known what it was?).
As for the doctor, should a man who is uncomfortable with the words 'bra' and 'prosthesis' really be working as a radiation oncologist with breast cancer patients? He seemed disbelieving when I told him that the treated area on my chest and back is still extremely tender and had no suggestions as to what I could do to ease this discomfort. When I told him that it hurts too much to wear a prosthesis, he said, "Well, you have to wear something in public."
This is the same doctor that objected to the fact that I do not have the same last name as my spouse.
Thank goodness this same spouse was once again in attendance. It was one of those appointments when it was really good to have someone there who knows me well, if only to say afterwards, "You are not crazy."
Booked my plane ticket to Chicago to attend BlogHer '07, thanks to air miles donated by my wonderful brother-in-law.
Nothing contributes to a sense of optimism like making plans a few months in advance. And just thinking about spending a week end with other women bloggers makes my heart beat a little faster.
Spring has sprung. I feel quite a bit better. And I finished this:
It's the little blanket that grew, my 'log cabin' from Mason-Dixon Knitting.
It is the most beautiful thing that I have ever made and it makes me happy just to look at it. It's been almost finished for weeks (since our return from the Florida trip where I worked on it in the car, both ways). And it smells good too, since I washed the potato chip smell out of it this afternoon (did I mention that I worked on it on a long car trip?).
Things are definitely looking up.
Thursday, April 19, 2007
this made me laugh
Too tired to write tonight.
I thought this was very funny, though.
And this, too (my dog is this smart):
The Hole - video powered by Metacafe
Wednesday, April 18, 2007
so damned tired
I am bordering on neutropenic again, which could explain why I have been feeling so rundown (and why the cold hit me so hard). My white blood count was very low on Tuesday, not low enough to cancel chemo but getting there.
I have an ultrasound scheduled for April 30 (and will get results at an appointment on May 4).
Meanwhile, I know the following:
- My liver is swollen, but not terribly so (and nowhere near where it was in November).
- My liver functions in two of the categories they test are normal. A third area was high but it is also the one the doctors worry about the least, as it can be indicative of other things going on with the body.
- It is not a good sign that I have been experiencing discomfort but my most constant stitch is nowhere near my liver (I really need to learn more about my own anatomy).
- The swelling and the fatigue could also be the result of my cold and my battered immune system.
I am feeling less stressed than I was on the week end (which isn't saying much, given that I was a wreck on the week end) and reassured enough that my worries are no longer top of mind.
So keep your fingers crossed for me.
And stay away from me if you are sick.
And for goodness sakes, wash your hands after you go to the bathroom (this is for the guy my spouse almost confronted at the cancer centre today, and who I'm sure isn't reading this).
Tomorrow, I will tell you about today's appointment with my radiation oncologist, another laugh or cry experience (I chose to laugh). My spouse has decided that I need to get one of these t-shirts and wear them to all future appointments.
I think he's right.
Tuesday, April 17, 2007
too stoned to blog
Still stoned from the Demerol. I'll write more tomorrow but wanted to let you all know that I had a fairly reassuring chat with the doctor on call today, during chemo.
I also have an ultrasound scheduled for April 30.
Update: This should really be a picture of a poppy but since I only have pictures of sunflowers (and tulips) this will have to do.
Friday, April 13, 2007
life and death
Suddenly, 'stable' is looking pretty good.
I try not to dwell on my fears. There are, however, times when the dark thoughts that nibble at the edge of my consciousness threaten to swallow me whole.
I want to live longer than the friend of a friend (and mother of young children) who died from liver mets within two years of her diagnosis.
I want to outlive the prognosis of "years not decades" that was gently delivered by my oncologist.
I want to be a living, breathing medical miracle.
I want to live.
Thursday, April 12, 2007
know any good jokes?
To that end, she recommended laughter. A good belly laugh every day is apparently worth a mountain of medicines.
So, does anyone have any funny stories to share? Books or movies that will make my face hurt from laughing so hard?
I'll get the ball rolling and recommend Bon Cop, Bad Cop. The humour may be a bit culturally specific but it did make me laugh. Hard.
What makes you laugh?
Wednesday, April 11, 2007
My sinuses are killing me and my head is full of goo.
I had to cancel dinner with friends this evening.
D. has had a series of tantrums tonight.
I was really looking forward to that dinner (and know that it would have been good to fight my increasingly hermit-like tendencies).
Tuesday, April 10, 2007
more than the sum of my parts
A scar where my right breast used to be.
Lymphedema in my back and arm.
Frozen shoulder from radiation.
Radiation burns on my chest and back.
Assorted minor but annoying side effects from chemotherapy.
Fifteen pounds gained in 2007.
Panic every time I feel a stitch in my right side.
I think it is time I talk to someone who specializes in treating the whole person.
Anyone have any advice on finding a naturopathic doctor? What about some questions to ask when I schedule a consultation?
Monday, April 09, 2007
sick in the head
I have what Sassymonkey had.
OK, so I probably didn't catch it through the internet but I do find it remarkably suspicious that I am sick and she is feeling better.
Or maybe I just caught the cold from my son, who routinely coughs in my face (or coughs in his hand and then puts it on my face).
Wouldn't it be interesting though, if we could catch stuff from the folks we visit regularly over the internet?
Clearly the cold dope has made me delirious.
Sunday, April 08, 2007
a time for excess
We've all been eating like little piggies this week end (and eating piggies, as last night's dinner was comprised of both a Passover brisket and an Easter ham). I think when next week rolls around it will be time for a little detox.
But I'll think about all that tomorrow, for in the words of an immortal heroine, "Tomorrow is another day."
Spoken like a true lover of meat fried in oil and chocolate rabbits.
Oh, and for the record, it is not actually true that S., pictured above, has not had a bath in seven months. He just likes to embarrass his mother by telling people that.
Thursday, April 05, 2007
new kind of cycle
So maybe I don't get PMS anymore but my moods are as tied to a cycle as they've ever been. My heart is lighter today and the sadness and fear I've been feeling seem to have evaporated.
I do not have chemo next week.
And that makes everything better.
Wednesday, April 04, 2007
the elephant at the table
Or the ostrich with its head in the sand?
I note that nowhere in this article do they mention environmental factors, such as pollutants and other toxins we absorb on a day to day basis.
Cancer cases to double by 2030, agency says
Updated: Wed. Apr. 4 2007 8:06 AM ET
UNITED NATIONS — The number of diagnosed cancer cases will more than double between 2000 and 2030, primarily in poorer countries, the director of the International Agency for Research on Cancer said Tuesday.
Dr. Peter Boyle said the reasons for the increase include population growth, longer life expectancy, more people smoking in the developing world and a lack of health care in poor countries.
In 2000, the agency estimated 11 million new cases of diagnosed cancer worldwide, seven million deaths from cancer and 25 million people living with cancer.
"We currently estimate that between the year 2000 and 2030, there'll be a more than doubling of the numbers of cases of cancer diagnosed each year," Boyle said. "And the great majority of this increase is going to be in the low- and medium-resource countries."
The agency, part of the World Health Organization, expects that by the year 2030, there will be 27 million cases of cancer, 17 million deaths from cancer and 75 million people living with cancer.
"We've been concentrating on cancer in high-resource countries and until essentially AIDS came along, we haven't looked too closely at what's going on in low-resource countries," Boyle told a news conference.
But he said new research shows that as time has progressed, there has been an increasing shift of cancer to poor countries.
"What's going to happen between now and 2030 is that the population is going to increase from about 6.5 billion to 8 billion in 2030," Boyle said. "So even if the risks remain constant at each five-year age group, because we've got more people around, we're going to have more cases of cancer."
An increase in life expectancy in the majority of countries, with the exception of some AIDS-ravaged countries in Africa, also is leading to a rise in cancer cases, he said.
Both China and India have continual growth in the number of people reaching older ages, Boyle said. "So if you've got more old people in the population with the same risks as the younger people, you're going to have more cases of cancer in the older population," he said.
Boyle said one of the unfortunate successes for developed countries in the last 40 years has been their export of cancer risk factors, such as cigarette smoking and alcohol consumption, to poor countries.
"These three elements are going to come together and that is going to drive up the global cancer button over the next 30 years," Boyle said.