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One woman's stories, adventures, observations and rants, lived through and beyond metastatic breast cancer.
This past week end, I went to a beautiful wedding with my family. In attendance were relatives I hadn’t seen in many years, lots of people I had never met and one of my favourite teachers from grade school.You can read the rest of this post here.I always feel a bit of awkwardness at these kinds of events, as I brace myself for the inevitable questions, “What are you up to these days?” or “What do you do?”
No one wants to drop the c-word at a wedding, least of all me.
When I am done, I will crawl off the bed a lot more slowly than I climbed onto it and my friend will take me home. For the next few days, I will feel like I have the flu. As my physical symptoms improve, my mood will worsen. By Friday, I will have to keep reminding myself that my rage and my sorrow are temporary.You can read the rest of this post here.And then Saturday will come and I will feel (more or less) like myself again.
If all goes well, things will continue like this over the next few months. Chemotherapy every four weeks. Clean scans every few months. And my echocardiograms will show that my heart still beats strongly and with regularity.
I am left with little to tell about my life as a cancer patient that is earth shatteringly new. But, as my spouse is quick to point out to me, when you have metastatic cancer of any kind, boring is very good indeed.
1. Venison
2. Nettle tea
3. Huevos rancheros
4. Steak tartare
5. Crocodile
6. Black pudding
7. Cheese fondue
8. Carp
9. Borscht
10. Baba ghanoush
11. Calamari
12. Pho
13. PB&J sandwich
14. Aloo gobi
15. Hot dog from a street cart
16. Epoisses
17. Black truffle
18. Fruit wine made from something other than grapes
19. Steamed pork buns
20. Pistachio ice cream
21. Heirloom tomatoes
22. Fresh wild berries
23. Foie gras
24. Rice and beans
25. Brawn, or head cheese
26. Raw Scotch Bonnet pepper
27. Dulce de leche
28. Oysters
29. Baklava
30. Bagna cauda
31. Wasabi peas
32. Clam chowder in a sourdough bowl
33. Salted lassi
34. Sauerkraut
35. Root beer float
36. Cognac with a fat cigar
37. Clotted cream tea
38. Vodka jelly/Jell-O
39. Gumbo
40. Oxtail
41. Curried goat
42. Whole insects
43. Phaal
44. Goat’s milk
45. Malt whisky from a bottle worth £60/$120 or more
46. Fugu
47. Chicken tikka masala
48. Eel
49. Krispy Kreme original glazed doughnut
50. Sea urchin
51. Prickly pear
52. Umeboshi
53. Abalone
54. Paneer
55. McDonald’s Big Mac Meal
56. Spaetzle
57. Dirty gin martini
58. Beer above 8% ABV
59. Poutine
60. Carob chips
61. S’mores
62. Sweetbreads
63. Kaolin
64. Currywurst
65. Durian
66. Frogs’ legs
67. Beignets, churros, elephant ears or funnel cake
68. Haggis
69. Fried plantain
70. Chitterlings, or andouillette
71. Gazpacho
72. Caviar and blini
73. Louche absinthe
74. Gjetost, or brunost
75. Roadkill
76. Baijiu
77. Hostess Fruit Pie
78. Snail
79. Lapsang souchong
80. Bellini
81. Tom yum
82. Eggs Benedict
83. Pocky
84. Tasting menu at a three-Michelin-star restaurant.
85. Kobe beef
86. Hare
87. Goulash
88. Flowers
89. Horse
90. Criollo chocolate
91. Spam
92. Soft shell crab
93. Rose harissa
94. Catfish
95. Mole poblano
96. Bagel and lox
97. Lobster Thermidor
98. Polenta
99. Jamaican Blue Mountain coffee
100. Snake
At first, I wanted so much to maintain my professional identity, to be the smart, strong person who just happens to be going through cancer treatment. I didn't want to be like those grey, wispy, shadowed people sitting in the waiting room in their headscarfs and their wheelchairs. When I had surgery and couldn't wash my own hair, it was hard to accept help because it just drove home my incapability. When I couldn't walk outside for a full half hour at a time, I felt the loss of my physicality more than I had ever felt its presence.I cannot say how much this spoke to me, even though Jenny has completed treatment and mine is ongoing. I have been thinking a lot lately about how strongly I feel about wanting to be seen as strong, vibrant and above all well, that I have even become defensive when anyone implies otherwise.
What the writer doesn't say, and what happened too slowly for me to watch, is that you really can go back to something like your old life, and leave that self-loss behind; but it's almost like a projection of your old life, one rendered in all the same colors and moving in the same patterns, but against a different screen, parallel to the old but never quite touching.