Wednesday, February 06, 2008

a post called "Pluck"

As I was getting my daily fix of the Yarn Harlot yesterday, I came across this post by Lene, of "The Seated View." You should really go read the whole thing (she raises some very interesting questions about how we view people with disabilities). This paragraph in particular, though, really resonated with me:
"There is no overcoming of disability. Because a chronic condition doesn't improve, you cannot conquer it, you cannot defeat it. Arthritis doesn't go away. Neither does MS, ALS, spinal cord injuries, muscular dystrophy, many types of blindness and deafness. There is only living with it, coexisting - sometimes uneasily, sometimes not. Having a disability is part of what you are, what you do. Sometimes it's a small part and sometimes, it overwhelms the rest. But what remains is this: you live your life anyway."
I am not disabled but I do have a chronic illness (and it's ongoing side effects) that has forever changed my relationship to the world and permanently altered my body. I wear these physical changes quite publicly, as lymphedema makes a prosthesis unwearable. And I need to work constantly to mitigate the post-surgical stiffness and the uncomfortable side effects of lymphedema.
The cancer will never go away completely (although we are doing a pretty good job of beating it back) but life goes on. There are many, many days when I feel wonderful, optimistic and healthy. But on the days that I don't, I keep living anyway. Because really, what other choice do I have?

And really, do go read Lene's post. I found it incredibly thought provoking and beautifully written.


Anonymous said...

Good stuff!

Anonymous said...

Excellent point

Mom2Amara said...

While I promise to read Lene's post, I did want to ask if I ever told you that I met the Yarn Harlot. She was amazing. And that's really what insprired me to even try my hand at knitting. Do you have a copy of her latest book? I'm done reading it so if you don't, I could send it your way...