it matters

Last Tuesday was treatment day. After a longer wait than usual (40 minutes -  I don't think I've ever waited that long in more than 6 years of treatment), my name was called and I was asked to go to Pod 3 (this sci-fi evoking nomenclature amuses me greatly, given that the world of cancer care is already pretty bizarre).

Despite my long wait, I noticed that Pods 1 and 2 were completely empty. Pod 3, however, was a different story. All 6 spots were occupied and there appeared to be only two nurses helping us all. 

Have you seen 50-50? I loved that film, and by and large, I found it to be a pretty accurate reflection of my own experience. One thing did raise an eyebrow though - the fact that they seated the patients in the treatment room so close together that their knees could touch. I understand that this likely fiction helped to advance the story but in real life I would never enjoy being so 'up close and personal' with my fellow patients.

For a while, things were almost that bad at the old cancer centre until the construction of the new building began. After that, the din was excruciating but it did block out my neighbours' reports to the nurses on the frequency of their bowel movements.

The move to the new cancer centre has been a huge improvement. I love the light and the air in the new building but most of all, I love the space. During my last couple of visits, though, it has felt like there is a little less space to go around. 

On Tuesday, I cringed as I heard the woman in the bed beside me being grilled about her emotional, physical and financial situation by a community care nurse. I tried to concentrate on my book while the woman across from me was informed that she would need a transfusion. I was very relieved when my own interactions with the nurse were over and I could plug in my ipod and let The Flying Bulger Klezmer Band drown out the voises around me.

I'm a fairly stoic cancer patient and it didn't really occur to me to complain. The nurses were lovely and patient as usual, and they were definitely doing their best to keep on top of everyone's needs. I didn't want to give them a hard time because I was annoyed and embarassed.

But it occurred to me later that these kinds of conditions are also unsafe and unhealthy. I, for one, am extremely reluctant to talk about the intimate changes to my body that are a side effect of treatment, so I can't ask how to mitigate them. My conditioned response in these circumstances is almost always to say "fine!" when asked how I'm doing. These days, that's pretty much the truth but that hasn't always be the case. There was a time, on a quiet treatment day about a year ago that I confided in a nurse that I'd been feeling low. She told me about the counsellors at the psycho-social oncology centre and asked permission to get someone to call me. A few sessions later, I was feeling much better.

I appreciate that I am getting cutting edge treatment and I know that's why I'm still alive. That's why I was initially reluctant to make a fuss about what seem to be little indignities.

But dignity matters. And how we feel as patients has a direct effect on our health. It's not petty or selfish to believe that there should be enough nurses working the floor so that patients don't have to be clustered together.

Maybe I should write someone a letter. Or maybe just a short note and a link to this blog post.

sesame challenged

My younger son was a diagnosed with a bunch of food allergies when he was very young. He's outgrown some of these (eggs, milk) and some seem to be around for the long haul (peanuts and tree nuts). 

Among the most insidious of these is sesame. It was the first allergy we suspected and has always been the one we find the most frustrating. It's in everything - try reading labels on bread products for a few days and you'll see what I mean.

Last year, we were offered the opportunity to do a blood test that can determine the degree of reaction to some common allergens. Out of a possible 100, Daniel's response to peanuts was as high as could be measured (this allergy is not going anywhere any time soon). His sesame reaction was 0.84. That's barely a reaction at all. When Daniel had no reaction to this year's sesame skin test, the doctor suggested a sesame challenge.

This, as I remember it, was our experience:

Sunday:

2:00pm: Tim goes out to buy Sesame Snaps.

3:00pm: Tim tracks down Sesame Snaps, discovers that they "may contain peanuts."

4:00pm Tim makes own version of snaps, with sesame seeds, sugar, ginger and lemon.

10:00pm-2:00am I have insomnia, partly due to sesame challenge. This may also be due the fact that I discover my free games of Chuzzle were re-newed when we reformatted my computer.

Monday:

9:00am: Daniel and I arrive at the allergists office.

9:10am: The doctor explains to us how the day is going to unfold.

9:12am: The nurse is blown away by our home made sesame snaps. Apparently most folks just bring in seeds.

9:20am: Daniel's arm is scratched with a bit of sesame. There's a bit of redness (which might be from being scratched but nothing more). Daniel says that it's itchy but remarks that "it might be psychosomatic."

9:25am: The doctor gives us the go ahead to continue.

9:45am: Daniel eats a bit of sesame snap.

9:50am He insists that his lips and tongue are itchy and swollen. I suspect anxiety (we have never been helicopter parents but I can only imagine how he must feel after practically a life-time of hearing the message - from many directions - that a food allergy can KILL you). The nurse sees no evidence of a reaction.

9:51-9:59: I attempt to distract Daniel with hang-man, offer him lunch out and cupcakes as a reward if he sticks it out.

10:00am: The doctor examines Daniel and sees no evidence of a reaction. Daniel is still anxious. The doc holds up a mirror so Daniel can tell that he looks fine. He soberly informs my eight year old that he can walk away now "but you will have to continue to abstain from eating sesame."

10:05am: I tell Daniel that he can have the whole day off from school.

10:06am: Tim drops off Daniel's DS.

10:10am-12:00pm: Testing resumes. Ever larger amounts of sesame are consumed without hesitation or reaction.The last couple of times, Daniel barely looks up from his Pokemon game.

12:00pm: We are dismissed, with one fewer food allergy on Daniel's list. The doctor (who remarks that Daniel is "a different kid" now that the test is over) instructs Daniel to eat lots of sesame in the next little while.

12:30pm: We celebrate!

Anyone know a good falafel recipe?

re-emerging

I don't know whether it's the unseasonably warm and sunny weather (It's about time I noticed that I get depressed every winter and recover every spring), a recent change of scenery or just the passage of time but I feel myself re-engaging with the world.

Shortly after writing my last post, I decided to "give up" on forcing myself to write. I was spending tons of time staring at the blank screen or coming up with creative ways to avoid writing - and feeling pretty miserable about it. What I was doing wasn't working and I had to make a change. So I decided to walk away.

But lately my heart beats a little faster when I think about putting pen to paper and fingers to keyboard. The creative synapses are buzzing and I have lots of ideas for new projects and a whole new approach to how I go about doing them.

It feels good.

lost my mojo

Mid-winter blues.

Bored.

No new ideas ("said it all before" syndrome).

Too much loss.

Whatever the reason, I have not felt much like blogging (or doing any writing) lately. 

I couldn't even muster up the energy to blog about the recent Komen debacle (although I took it all in with great interest).

And I can barely bring myself to think about Rachel (a scathingly brilliant and funny anti-pinkwashing activist and kindred spirit) or Susan (an equally brilliant leader, founder of Mothers With Cancer and mother of two young boys) without becoming undone. They deserve the kind of tributes others have written but I can only say who devastated I am that cancer has taken two more wonderful women.

So, I've been taking a break. 

And fallen out of the habit.

I think I might be ready to come back soon. Or to get back to writing down some thoughts.

And spring will come soon too.

Meanwhile, please know that all my latest tests have been gloriously normal. I'm doing OK. I just need to get past this dry spell, so I can return to writing with joy and enthusiasm.

3 truths

No one can understand hot flashes unless they have experienced one.


It is so much easier to appreciate the beauty of one's own community when viewed through a visitor's eyes.


This is the definition of  good friends: You don't think twice about letting your kid go to their place for dinner wearing pajamas. And when you get there you discover that their kid is still in pajamas too!

photo: M. Slavitch

and the winner is...

Nancy from Nancy's Point! I'll be sending her a copy of Not Done Yet early next week.


Thanks so much to everyone who entered.


I'm hoping to have an ebook version of my book out soon. This will make it so much easier to send out (and no more shipping costs!)

not done yet: a giveaway

I'm feeling completely uninspired on the  blogging front, so I've decided to run my first ever contest. 


Would you like to win a copy of my book, Not Done Yet: Living Through Breast Cancer? To enter, just tell me why you'd like to have the book (it can be serious or funny) in the comments section and I'll pick a winner at random, on Friday, January 27th. Contest closes Thursday, January 26th at midnight.


There are only a few unsold copies left, so get one while you can.


In other news, I'm reliably informed that my publisher is planning on re-releasing Not Done Yet as an ebook. No more shipping costs!

Pink Ribbons Inc.

3 tips

I've been asked by BreastCancerAnswers.com to come up with three tips I'd like to share about going through breast cancer treatment. This poses an interesting challenge. I had to ask myself, "Out of all the good advice I've received and doled out, what three things have stayed with me? Living, as I have, in cancer treatment for 6 years, what is most important."


This is what I came up with:


1. Don't be too hard on  yourself and don't compare yourself to anyone else (why yes, this is one tip - the two statements go together, OK?). Just as every cancer is different, treatments vary widely and so do our responses. Just because that you've been told that Jane worked full time and ran 5k every day of treatment doesn't mean that you ought to be doing these things. And conversely, you don't have to become a shut in just because Jane chose to stay in bed for weeks at a time. Who knows? Jane's choices may have been made because of what other people told her she should be doing. Do what's right for you.


2. When in doubt, bring a friend. People like to be asked to do specific things to help friends and family going through treatment. Don't be afraid to ask for company. Some of the meds I take leave me so wobbly I couldn't make it home without assistance. But even if I feel fine, I've been very happy to have a friend with me to provide a distraction during treatment or be a second pair of ears during appointments.


3. Live in the moment. We all want and hope to put treatment behind us. It really helps me, though, to take a look around and see the things that are good in my life right now. This doesn't come easily to me. I'm someone who lived much of my life looking ahead. I'm working on identifying those things in my life that give me great joy - and then savouring them.


I think that's it. If you've been through cancer treatment, what three tips would you share?

makes me happy

As a way to ease myself out of my winter ennui, my therapist suggested I do some journalling about the things that make me happy. Some of those things are probably evident to anyone who knows me even a little:


Hanging out with my kids.


Laughing with my sweetie.


Watching my dog run in the snow.


Riding my bike.


Reading a good book.


Being in a yarn store with money to burn.




But when I dug a little deeper, I came up with some things that are a little less obvious:


The moments of real connection that can pass between friends and strangers.


Having a good idea.


Eating a healthy, tasty meal I've made myself.


Clicking the "Publish" button on a good blog post.


Getting positive feedback about my writing, especially from other writers.


Looking forward to a trip, whether near or far.


Texting with my BFF.


And, perhaps not surprisingly, it turns out that writing about what makes me happy...makes me happy.

if you can't beat it, sit in it

if it's not on a list, then it doesn't exist

If I have any latent OCD going it, the condition manifests itself in the form of making lists. My name is Laurie and I am a compulsive list maker.

I have to-do lists (of course).

I keep the lists of the books I read (58 in 2011), how many come from the library (40 last year) and how many were by the same author (Michael Connolly was the big winner in 2011. I read 8 of his books).

I also track how much exercise I get (only 130 minutes so far this week. I got off to a slow start) and how many minutes I spend cleaning the house (it's a lot more than you'd think, if you ever saw my place).

I track how many minutes I spend writing and how much time I spend online. I track my weigh and - since January 1st- the number of calories I'm consuming.

It's an addiction. Writing lists and keeping track of things soothes me the in the same way that a piece of fudge can take the edge of a bad day. As with the fudge, I'm not entirely convinced that it's helpful. But I have no intention of stopping. 

In the years since I stopped working at a paid job, I think the lists provide the illusion of the structure that I miss terribly. Sometimes, when my life is feeling out of control, just making a few lists can make me feel calmer. 

As long as the lists don't get too long, or there aren't too many of them, I don't think there a bad thing. The trick is not to let my self-created lists oppress me into paralysis. Or become so time consuming that keeping on top of my lists takes up my whole day.

Maybe I should make a list of all my lists, just to make sure there aren't too many.

Or maybe not.

2012: ditching the Guilt

What Catholic girl (former or otherwise) doesn't learn to feel guilty at a very young age? I was always a bit of an overachiever. I'm good at Guilt.


I feel guilty that I have No Evidence of Disease when other wonderful women have died.


I feel guilty that I'm not working.


I feel guilty that I have insurance.


I feel guilty for being alive.


And, with every clean scan, every month that I continue in treatment that does not include chemotherapy, the guilt just gets worse.


It's not very constructive.


I need to figure out how to free myself from the Guilt. It distorts my perception of myself and others like a greasy hand-print on the lenses of my glasses. I have to figure out who I am and what I want, without having to squint or interpret what's on the other side of the smudges.


It won't be easy. And it may take me more than a year. But that's what I'm working on in 2012.

in other news

My children are still very beautiful.

(photos: Mary Anne Folckomer Register)

not imaginary

It's a running joke in my house, "Mama's talking to her imaginary friends." They're the people I've met online over the last few years, through blogging and various social networks. Of course they are very real people and when bad things happen to them, I do feel it keenly.


S., though, was someone I met in person - at the Conference for Younger Women Affected by Breast Cancer in early 2009 - and with whom I continued to connect online. We first connected because we both had metastatic breast cancer but soon realized that we had much more than the cancer in common - a progressive outlook, quirky gifted children and we both chose to expressive ourselves in creative ways. Unlike me, though, S. was a bona fide artist who used fabric as her medium.


S. was about my age. She had been diagnosed at Stage 0 but the cancer seemed to have quickly metastasized (was it just very aggressive or had something been missed? This was one of the things we discussed over dinner on the evening we met). We ended up spending all of our free time together, during that long week end in Atlanta - every coffee break, meal and evening. We even grabbed lunch together before grabbing our shuttle to the airport.


We stayed in touch after we got home, exchanging the occasional email and through the Care Pages that S. set up to share news with family and friends. She wrote to me about her latest art project (which integrated images of cancer cells), her daily life and a wonderful trip that her family took to Costa Rica. She also shared her frustration with the fact that no treatments seemed to slow the progression of her cancer.


Last week, I received a notice that S.'s Care Page had been updated. I logged in and found a message from her husband: saying S. had had moved from treatment to hospice care. Yesterday, he contacted us to say that this remarkable woman had passed away in her sleep.


I've run out of words to describe my sadness and the grief I feel on behalf of her family. Another child has lost her mother. It's all so wrong.


Over the week end, Zoom remarked that having cancer brings a lot of people into your life but takes a lot of them out, too. And, the truth is, I would do nothing differently, even knowing I would face loss and be forced to confront the possibility of my own death. The people who have come into my life - online and off- since my cancer diagnosis have improved my life immeasurably. I wouldn't trade that for anything.


But, right now, my heart is aching.

Judy

I'm sure she did not "go gently into that good night." 


Judy was a fighter, a woman whose Facebook page stated "I love my life." And that was life centered around her family and friends, especially her 10 year old son and her husband.


I first met Judy (and I do feel like I knew her, even though we never met in person) when 20 or so women were brought together by Susan to form the group blog, Mothers With Cancer. It was clear from the outset that Judy  would become a particular friend.


She had a passionate sense of social justice, a dark sense of humour and a straightforward manner that endeared her to me immediately. Like me, she loathed the pinkwashing that takes place every October. We even both had dogs who were considered part of the family.


Judy never stopped being angry about cancer. She railed against the unfairness of a world that afflicts so many of us with this evil disease.


At the same time, she never stopped appreciating the beauty in the world around her - in her environment, at work and in her family and friends. She never stopped finding things about which to laugh.


It's because of Judy that I applied for Little Pink Houses. I know that her family's week with the organization was a glorious experience (and so was mine). We often said how great it would be to meet up in person. Jeanine from Pink Houses did meet both of us and told me she is confident that we would have liked each other as much in person as we did online.


Judy, my friend, I miss you already. My heart goes out to everyone who loves you, especially Nate and Frank. Many, many, many people mourn your loss and celebrate your life.

a message in my library book

Deanna: a tribute

Brilliant.


Funny.


Committed.


Accomplished.


Artistic.


Strong.


Insightful.


Perceptive.


Inclusive.


Accepting.


Activist.


Loving mother, daughter, sister, friend.


I struggle for the words to write you the tribute you deserve. You are loved, admired and missed by so many.


My heart goes out to your family. I will hold you in my heart forever and continue to be inspired by you every day.


http://deeupdates.blogspot.com/

re-charging

love

photo: Mary Anne Register Folckomer

open letter to vendors who participate in group-buy programs

Dear Vendors,

I love group-buy deals (those you offer through Living Social, Dealfind, Groupon, Koopon, etc.) but I don't love them as much as I did a few months ago. I've had a few experiences that have turned me off group-buying and made me dislike some of the vendors who have chosen to participate.

Here's my unsolicited advice for any vendors contemplating participating in a group buy opportunity:

Don't act resentful, frustrated or even surprised when I call to cash in on my voucher. You may be regretting your decision to participate or overwhelmed with the response but that's not my fault. And if the point of selling these things is to introduce me to your business, then making me feel like my call is unwelcome is not the way to start our relationship.

Don't complain about the low price you set for your voucher. It makes me feel like you're accusing me of pulling a fast one or trying to rip you off.

Don't sell more vouchers than you can accommodate in a timely fashion. I bought a voucher for house cleaning in early October - but the earliest they can come is January 17, 2012. I'm pissed off and our relationship has yet to begin!

Don't add on additional fees that are not mentioned in the voucher. It's not cool to make me pay a "sign up fee" or tell me that the group-buy people "forgot to account for taxes."

Don't treat voucher clients like second class citizens. Unless you've stated this clearly on the voucher, I shouldn't have to wait outside your class/restaurant/spa to make sure that all those who've paid the full freight have been served first and then get whatever is left over.

The goal of participating in the group-buy process should be to attract new customers - ones who will keep coming back. If the voucher experience isn't a positive one for everyone who buys in, then the vendor has indeed wasted time and money.

I know that the group-buy companies engage in some pretty hard sell strategies (I once sat in a cafe and listened to the owner say 'no' several times, in several ways to a group-buy salesperson) but if you've leapt, you might as well make the best of it.

I've had three group-buy experiences so far that have been delightful. Two were with restaurants (Foolish Chicken and Kinki) and one was with a local yarn store (Wabi Sabi). I was already a fan of the chicken place but this just reinforced my loyalty (and I bring lots of others with me). I'd not been to Kinki for years but the experience was so lovely that I'll go again (and again). And the owner of Wabi Sabi was so incredibly helpful and gracious that they've won me over (and I've been telling everyone else to go, too). Those vendors could give lessons to some of the rest of you.

So, vendors, think before you sign up with the group-buy people. And if you decide to participate, be gracious, organized, responsive, welcoming and fair. Don't make me regret having bought what you're selling.

Very sincerely,

a potential customer

Canada Reads 2012

The top five Canada Reads 2012 books were revealed yesterday, as well as the five Canadians who will advocate on their behalf.

Despite my frustrations with how things went down last year and my initial resistance to an all non-fiction Canada Reads, I'm excited. 

The books look interesting and their defenders seem passionate. And almost as diverse as Canadians can be.

I really enjoyed reading last year's book choices. It was the actual debates that set my teeth on edge. If I had been one of the authors of last year's books, I would have been very disappointed in the quality of discussion (except for Sara Quin defending Essex County - she was wonderful). The conversations were generally at the level of a school yard taunts ("Oh yeah! Well I'm going to vote against your book because you didn't like mine!" "I didn't even finish reading your book but I'm going to tear it down anyway!"). There was so little discussion about the actual content of any of the books. How is it that the Canada Reads debates made me less interested in novels I had already read and enjoyed?

But that was last year.

The best part of Canada Reads in any year is reading the books. It's also the biggest commitment. And I've decided to do it.

Will you join me?

The books chosen for 2012 are:

The Game by Ken Dryden (defended by Allan Thicke)

On a Cold Road by Dave Bidini (defended by Stacey McKenzie)

Prisoner of Tehran by Marina Nemat (defended by Arlene Dickenson)

Something Fierce by Carmen Aguirre (defended by Shad)

The Tiger by John Vaillant (defended by Anne-France Goldwater)

i don't understand

The Canadian Task Force on Preventative Health Care has released new guidelines for breast cancer screening. Among other things they have recommended that women under the age of 50 with an "average risk of breast cancer" not be referred for regular mammograms. Women over 50 would only get mammograms every 2-3 years (as opposed to every year). They also advise against regular breast exams and self-examination.

I don't understand.

On their web site, the Task Force gives no reasons for these guideline changes but I have heard several interviews on the radio and the main arguments seem to be that mammograms generate too many false positives, submitting many women to uneccessary biopsies and other intervention. 

There must be more to this. I have to be missing something. I have witnessed the trauma and fear that false postives inflict on the women and their families who live through it. However, I don't think it's as bad as the trauma of being diagnosed at Stage 4 because breast cancer was not caught at an earlier stage. And breast cancer in younger women, is often more aggressive.

Is there a part of this story that I'm missing? Task Force spokespeople insist that the new guidelines were not influenced by the desire to conserve resources. Really? Colour me skeptical.

The Canadian Breast Cancer Foundation released a statement yesterday in support of regular mammography and critical of the new Task Force guidelines:

“The fact is scientific evidence demonstrates that earlier detection and diagnosis can save lives among women 40-49 by at least 25%,” said Sandra Palmaro, CEO, Canadian Breast Cancer Foundation – Ontario Region.

Palmaro added that screening can help find cancers that are smaller and haven’t spread, which can allow for better treatment options and reduced disability and death from breast cancer. Breast cancer continues to be the most frequently diagnosed cancer among Canadian women.

 One of CBCF’s most significant concerns about the Task Force report is that it relied heavily on old data from “randomized controlled trials” (RCT’s) related to breast cancer screening and mammography, some of which are 25 – 40 years old and were based on equipment that is now outdated. There has been an enormous change in breast imaging since that time, including significant improvements to analog technology, and the continued adoption of digital mammography across Canada. Digital mammography has been shown to increase accuracy in younger women pre and perimenopausal women, and women with dense breasts, the group the Task Force recommends be excluded.

This sounds pretty convincing to me. Your thoughts?

Photo: Mary Anne Register Folckomer

metaphor

it is what it is (and what it is is ok)

Herceptin makes me feel lousy. Or maybe it's the Demerol they give me from flopping around like a fish with a fever. Either way, after every treatment I feel achy and hungover for a couple of days.

It's a not nearly as bad as when I also have chemo (and I bounce back more quickly) but I'm still really dragging my butt around, when I bother to get up at all. I'll go for a walk later but it will take every ounce of the meager willpower I possess to get myself dressed and out the door.

I saw the cardio-oncologist again on Monday and that appointment went as well as could possibly be imagined. My heart was slightly damaged by the Adriamycin but has remained just below normal, since being on the Herceptin. The verdict: I can continue with Herceptin. I don't need to have heart scans every three months, as I have been. I don't even need to be followed by a cardio-oncologist unless my ejection fraction dips below 45 (it's currently around 49) or I experience symptoms of heart failure (um, yeah).

It appears that this whole heart scare was a tempest in a teapot - a reminder that when it comes to treatment of women living with metastasis, doctors are just making stuff up as they go along. They really don't know the long term effects of the drugs that keep us alive because our being alive and in remission is still so unusual. It's a bit unnerving but, given the alternative, I'm happy to serve as a human guinea pig.

Cross-posted to Mothers With Cancer. 

what i did on my november vacation

We just got back last night from our post Little Pink Houses of Hope road trip and I'm just too tired to put together very many coherent sentences. I'll write more later this week but I wanted to tell you all that my family had unbelievably fabulous time in Myrtle Beach.

Here are just some of the things I did:

Had my first Krispy Kreme donut.

Discovered real fried chicken and North and South Carolina barbecue and banana pudding.

Gained four pounds.

Spent time in the sun on the beach, walking, playing and just sitting around.

Enjoyed the glorious weather.

Learned how to hula dance and watched a man swallow fire.

Read 575 pages of a book and still have 1000 to go.

Went fishing without touching a pole and had a glorious time.

Blew off NaBloPoMo. I was having to good a time to waste it hunting down wifi.

Went to a concert with celebrity look-alikes who weren't dressed in drag.

Had my first manicure.

Dressed up to have my photo taken.

Played mini-golf.

Learned that southern hospitality is a wonderful thing.

Met many wonderful people.

Enjoyed my beautiful family.

Went for walks by myself.

Relaxed, unwound and chilled out.

Felt supported, cared for, spoiled and restored.

"Lived stronger. Loved harder. Laughed deeper."

I am so grateful to Jeanine, Melissa and all the wonderful volunteers, donors and families who make Little Pink Houses of Hope such a wonderful experience.

taking stock

(from Myrtle Beach, South Carolina)

16 hours of driving

31 hours on the road

countless new people

4 bedrooms, 3 baths

2 happy kids

1 bad sunburn

immeasurable kindness.

roadtrip connection

She made him in about 25 seconds.

I was getting breakfast at a hotel in Woodbrige, Virginia with Daniel at my side when an older woman came up to me and said, “You've got a busy guy there.”

I glanced over at my son, who was making pyramids out of the mini-cereal boxes and smiled. “I definitely do.”

“My grandson was just like that,” the other woman assured me. “And now he's on the national speedskating team. He kicked butt at his last competion.”

“That's great!” I said and meant it. I love these kinds of stories.

“So you, see,” the woman added. “It all works out in the end. His name is John-Henry,” she said proudly.

I promised to look him up, and I did. She wasn't kidding. He is kicking speedskating butt and things really have worked out that formerly “busy boy.”

off the top of my head and maybe out of my mind

Last spring, I shared a bit of tabloid inspired writing about a mother who is revolted by her own child that I'd done as homework for a class I was taking. A few days after I wrote that piece, we did an in class excercise, starting with the prompt, "It was a strange creature and it was looking right at me." How could I not be reminded of my bat boy? I wrote this by hand and in ten minutes but I think it's kind of fun.

I love the inspiration and motivation that comes from being part of a writing group. I miss it.

It was a strange creature and it was looking right at me. Someone had called to say they'd seen a strange looking man hanging out by Berit's Cave. No one thought much of it, until some smart young deputy mentioned the report that had crossed my desk the day before. The missing boy from up North. He'd stolen a car and not been heard from since. The thing was that the car was expensive but that was not what had folks all riled up. What really mattered was what had been inside the trunk of the car – a brief case full of cash. The had likely not known the bonus he was acquiring when he stole that car but he had stolen it and the folks in Maryland were very keen to get it back. And they'd said the boy was odd-looking, too.

Odd-looking. Funny-looking. Those expressions did not do justice to the creature that stood before me. At first glance, I thought I was seeing a monster. When rational thought returned, I saw that I was looking at a young man – a boy really – whose features looked disconcertingly like those of a bat. He had pointy ears, tiny eyes, a pushed in nose and his teeth – I saw them when he opened his mouth to yell at me – were small and sharp, as though the owner had filed them to a point. Not to put too fine a point on it, the kid was hideous.

I started to ask who he was and about the stolen car when he charged at me, head lowered like a battering ram. He wasn't very big but the attack and the accompanying ear splitting scream caught me by surprise. Before I could react, I had fallen ass over tea kettle and the boy was on the run. It took a second to regain my composure – was it only a second? Before I called for back up. I told 'em to send for the young deputy – I hoped his feet would be as fast as his mouth.

I didn't want to chase the boy. It wasn't really my bad leg – the excuse I gave to my sheriff. The fact was, the boy had really freaked me out. It wasn't just that he was ugly – although he was that – but it was the eyes that had scared me the most. There was no soul there. When I looked at him, all I saw was emptiness reflected back at me.

I wish I'd thought of sharing this on Hallowe'en. I wonder if there's more writing my bat boy can inspire.

outside the zone

In the nearly six years since my initial breast cancer diagnosis, I have become increasingly introverted. As a child, I was pretty outgoing. However, later in my teens and throughout adulthood I have developed a form of social anxiety that makes it easier to address a crowd of hundreds than to speak to a handful of new people at a social gathering.

I come by it honestly - anxiety disorders run in my family - but the structure of my day to day life hasn't helped. When I was going to an office every day, I had to interact with co-workers and new people every day - and (mostly) I enjoyed it.

I've always liked spending time on my own but these years of introspection have made it seem like more of a hurdle to confront social anxiety. I have a busy social life but I choose to spend time mostly with trusted friends, going places that are familiar to me.

I don't think there's too much wrong with that but I have seen how fears can make one's world smaller and deprive us of experiences that we might enjoy or, at the very least, that can teach or inspire us. I talk to my kids a lot about how everyone needs to strike a balance between doing things we know that we love and undertaking new challenges - about how confronting our fears is often the only way to make sure that our fears do not come to control our lives.

This year, I've been very inspired by my friend Andrea, who has taken it upon herself to do many things that take her outside her personal comfort zone. While she's danced and travelled and taken on public speaking, I've attended a conference, taken a job as an Elections Ontario officer for a day and now - my family is heading on an entirely new adventure.

This morning, we are pointing the car towards Myrtle Beach, South Carolina, on our way to take part in a week-long family vacation hosted by Little Pink Houses of Hope. We will be joined by 13 other families and every mother in the group will have been treated for breast cancer. The only mandatory group activities will be dinner on the first night and the last. In between, we will be in our own beach house and all group meals and activities (in the past, these have ranged from jewelry making to hang-gliding) during the week are optional. I'm very grateful for the opportunity and the generosity of the organizers but I'm also freaked right out.

It's going to be an experience. And, as Susan (aka the Bubbster) pointed out to me in an email, "The trip sounds wonderful and you'll all 'dine out' on the vacation for years to come. They'll be happy and funny stories, I know." 

In other words, great blog fodder. And most definitely, an interesting experience.

Movember Man

Does it seem to you like there are a lot of men in your neighbourhood sporting really bad facial hair? You're not imagining things. It's Movember!

All this hairyness is happening for a really good cause - to bring an end to prostate cancer. This is a fundraiser/awareness campaign that I like very much. It amuses me, no one needs to buy some carcinogenic/useless/environmentally unfriendly product to participate and we are all reminded of the cause every time we look at a man and wonder "Is he or isn't he?"

If you know a man who's participating in Movember, please support him. If you don't, please support my friend Ken. He and I go way back (more than 20 years - gulp). He is a Good Man - funny, kind and with a generous heart. He really deserves your support. Besides, he's being very brave. The last time he sported a moustache was a very long time ago and it was a little - well - scraggly. Many men's beards improve greatly over the decades (Tim's certainly has) but, as Ken sets out on this adventure, he just doesn't know how it's going to go.

I've already donated. It was a selfish act really. I want him to post photos.

All funds raised in Canada during Movember go to Prostate Cancer Canada, awareness and education programs and towards a Global Action Plan to eradicate prostate cancer worldwide. I can get behind that. Will you?

chemo brain or just getting older?

A few days ago, a massive filling popped out when I was brushing my teeth.

I made an appointment with my dentist to go in today. It hurts, so I've been very much looking forward to this appointment, mentioning it a lot and looking forward to being able to chew again.

I was shocked this morning when my dentist's office called, and his assistant said, "You're supposed to be here. Do you remember your filling?"

I hadn't forgotten my appointment or the filling (did I mention it hurts?) but I had been convinced it was at 2pm this afternoon, not 9:20 this morning.

As it turns out, they did have an opening at 2pm, so I will get my tooth fixed this afternoon, after all. As she was hanging up, the assitant said, "It was just a misunderstanding." I responded with "No, I'm an idiot."

Please tell me that this kind of thing happens to you, even if you've never had chemo.

back at it

I've decided to participate in National Blog Posting Month (or NaBloPoMo) this year, after a two year hiatus (in 2009 I did NaNoWriMo instead and last year, I just didn't feel like it). Let's hope it brings inspiration and a renewed commitment to regular writing.

I'll be accepting suggestions for blogging topics. If previous years are any indication, expect this month's content to be pretty eclectic.

wishing for a dreamless sleep

I'm about to hit the hay. I've been plagued by wild dreams of late and I'm hoping tonight's sleep will be deep and dreamless.

No discovering that I've not graduated from high school.

No returning to live with my parents while I complete school.

No wandering the halls unsure where I'm supposed to go and unable to find the office or a time-table.

No discovering I'm way, way hopelessly behind.

No finding myself responsible for other people's babies.

No getting my stomach pumped.

No crawling into bed, only to discover that I've let myself into a stranger's home and I'm under the covers of their guest bed in their living room.

No mowing the same stranger's giant lawn under a blinding hot sun.

No dead dogs on the lawn.

No horrible hair cuts.

Just sweet, dreamless sleep. 

Wish me luck.