Wednesday, April 30, 2014

we are a community. and we need to be heard

I was going to post about Blog Out Loud Ottawa (#boloottawa) but that's going to have to wait because I want to tell you all about something that's happening tomorrow.

The text reads:

"The Honourable Dr. Hedy Fry, Member of Parliament for Vancouver Centre and Federal Liberal  Health Critic, will be joined by the Canadian Breast Cancer Network to discuss the tabling of her Private Member’s Bill calling for a National Metastatic Breast Cancer Day on October 13th of each year. The Canadian Breast Cancer Network will be represented by Ms. Niya Chari, Government Relations Manager. Ms. Laurie Kingston will represent the Metastatic Breast Cancer community."
I paused for a moment at the description of my role at the table but then realized how very accurate it is. As much as I wish I didn't have metastatic breast cancer, I am very proud to consider myself part of the MBC community. I'm among some very good, smart, organized, supportive, strong advocates for change.

Metastatic Breast Cancer Awareness Day has already been designated by the US Congress and Senate. A Canadian MBC Awareness Day won't effect change on its own but it's a step in the right direction.


Metastatic Breast Cancer Network (MBCN) said...

Hope Canada moves to recognize October 13 as Metastatic Breast Cancer Awareness Day! Our organization, Metastatic Breast Cancer Network, lobbied the US Congress in 2009 for the day to be proclaimed and it has been observed since then--a good rallying point amidst bc awareness month to provide some education about how mbc differs from early stage bc and how much we need to make this a chronic disease with more and better treatments.
Keep us posted!

Ginny Knackmuhs

laurie said...

Thanks, Ginny. The Bill has been introduced. Not all Private Members' Bills make it through the next step. What happens next, is actually pretty much up to luck. Hopefully the Bill makes it to the floor of the House of Commons where it can be discussed.

Barb said...

Laurie - I was thrilled to read that you are advocating for Oct 13th to be MBC Awareness day in Canada. For the past two years I have held a local MBC awareness campaign with coffee sales from a local restaurant going toward support & research of MBC. Last year I also held a very successful fundraiser for the same cause. I am planning on continuing with both of these events on a yearly basis as well as expanding MBC awareness day to neighbouring communities. Looking forward to hearing that this bill makes it onto the next step. Is there anything that can be done to support this?