Congratulations, Laurie! And thanks for including me.
Watching the donations grow was a fun passtime for the past 3 months and the actual event made up for in social and logistical work-out what my plantar-faciitis prevented it from doing in physical work-out.
Here's to very-soon cure. And to many years of good health, much happiness for all of us!
Congratulations on crossing the finish line! You are an inspiration. Just discovered your blog. Recently started one myself at www.nancyspoint.com. Hope you can check it out sometime.
Congratulations Laurie! What an accomplishment! I came across this article, and thought you might like it: http://tinyurl.com/26x2ddd The title of it is 'Why I'm not celebrating breast cancer awareness month.' Definitely food for thought!
Everyone knows that October is Breast Cancer Awareness Month. But not everyone knows that Oct. 13 is Metastatic Breast Cancer Awareness Day.
As you know, there is no cure for metastatic breast cancer.
Metastatic breast cancer patients are often overlooked during October. Treatment is for life and some stories don’t fit the Triumphing Over the Odds template beloved of many journalists.
As someone with MBC, I'd like people to know that: >Metastasis refers to the spread of cancer to different parts of the body, typically the bones, liver and lungs. >Treatment is lifelong and focuses on control and quality of life vs. curative intent. >About 6% to 10% of women like me are Stage IV from their initial diagnosis. >Early detection is not a cure. Metastatic breast cancer can occur ANY time after a woman's original diagnosis, EVEN if she was initially Stage I, II or III. >Only women with Stage 0 (noninvasive breast cancer) aren't considered to be at risk for metastatic breast cancer. >Between 20% to 30% of women initially diagnosed with regional stage disease WILL develop metastatic breast cancer. >Young women DO get metastatic breast cancer. > There are many different kinds of metastatic breast cancer. >Treatment choices for MBC are guided by hormone (ER/PR) and HER2 receptor status, location and extent of metastasis (visceral vs. nonvisceral), previous treatment and other factors. >Any breast lump, thickness or skin abnormality should be checked out. With inflammatory breast cancer, there's no lump-the breast can be red and/or itchy and the skin may have an orange-peel like appearance. >Women shouldn't use the recent mammogram controversy to postpone their first mammogram or delay a regularly scheduled exam, especially if they have a family history. >Mammograms can't detect all cancers. Trust your instinct. If something feels “off” insist on further diagnostic testing. >Metastatic breast cancer isn't an automatic death sentence-although most women will ultimately die of their disease, some can live long and productive lives. >There are no hard and fast prognostic statistics for metastatic breast cancer. Every woman's situation is unique. >There are many excellent online metastatic breast cancer resources. Examples include www.mbcnetwork.org www.inspire.com and www.metavivor.org.
Thanks all! Katherine: I have MBC too, so I understand what you're going through. I agree with all of your points and, in fact, I believe all of them have been discussed on this blog. The was designed by my friend Jacqueline, herself a breast cancer survivor. We met because of our mutual dislike a pink-washing.
photo: Ian Hendel
9 comments:
Congratulations, Laurie!
And thanks for including me.
Watching the donations grow was a fun passtime for the past 3 months and the actual event made up for in
social and logistical work-out what my plantar-faciitis prevented it from doing in physical work-out.
Here's to very-soon cure.
And to many years of good health, much happiness for all of us!
Excellent! And good job running!
HOLY CRAP! Congratulations!
Love the scarf. And the hat is way snazzy.
Congratulations on crossing the finish line! You are an inspiration. Just discovered your blog. Recently started one myself at www.nancyspoint.com. Hope you can check it out sometime.
I am so proud of you.
I was so happy to finally meet you and to be a part of your team. I would love to do this again next year....hint hint.
Thanks again Laurie for all that you did to put us together!
Congratulations Laurie! What an accomplishment! I came across this article, and thought you might like it: http://tinyurl.com/26x2ddd
The title of it is 'Why I'm not celebrating breast cancer awareness month.' Definitely food for thought!
Everyone knows that October is Breast Cancer Awareness Month. But not everyone knows that Oct. 13 is Metastatic Breast Cancer Awareness Day.
As you know, there is no cure for metastatic breast cancer.
Metastatic breast cancer patients are often overlooked during October. Treatment is for life and some stories don’t fit the Triumphing Over the Odds template beloved of many journalists.
As someone with MBC, I'd like people to know that:
>Metastasis refers to the spread of cancer to different parts of the body, typically the bones, liver and lungs.
>Treatment is lifelong and focuses on control and quality of life vs. curative intent.
>About 6% to 10% of women like me are Stage IV from their initial diagnosis.
>Early detection is not a cure. Metastatic breast cancer can occur ANY time after a woman's original diagnosis, EVEN if she was initially Stage I, II or III.
>Only women with Stage 0 (noninvasive breast cancer) aren't considered to be at risk for metastatic breast cancer.
>Between 20% to 30% of women initially diagnosed with regional stage disease WILL develop metastatic breast cancer.
>Young women DO get metastatic breast cancer.
> There are many different kinds of metastatic breast cancer.
>Treatment choices for MBC are guided by hormone (ER/PR) and HER2 receptor status, location and extent of metastasis (visceral vs. nonvisceral), previous treatment and other factors.
>Any breast lump, thickness or skin abnormality should be checked out. With inflammatory breast cancer, there's no lump-the breast can be red and/or itchy and the skin may have an orange-peel like appearance.
>Women shouldn't use the recent mammogram controversy to postpone their first mammogram or delay a regularly scheduled exam, especially if they have a family history.
>Mammograms can't detect all cancers. Trust your instinct. If something feels “off” insist on further diagnostic testing.
>Metastatic breast cancer isn't an automatic death sentence-although most women will ultimately die of their disease, some can live long and productive lives.
>There are no hard and fast prognostic statistics for metastatic breast cancer. Every woman's situation is unique.
>There are many excellent online metastatic breast cancer resources. Examples include www.mbcnetwork.org www.inspire.com and www.metavivor.org.
Thanks all!
Katherine: I have MBC too, so I understand what you're going through. I agree with all of your points and, in fact, I believe all of them have been discussed on this blog.
The was designed by my friend Jacqueline, herself a breast cancer survivor. We met because of our mutual dislike a pink-washing.
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