tag:blogger.com,1999:blog-20882588.post3752112920212386278..comments2024-03-20T03:37:35.596-04:00Comments on not just about cancer: this could be melauriehttp://www.blogger.com/profile/14533311678025418958noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-20882588.post-40477287992786834772011-09-23T16:51:01.606-04:002011-09-23T16:51:01.606-04:00I don't really have a story to submit - yet. I...I don't really have a story to submit - yet. I have not relapsed while on Herceptin but I've been warned that this could happen.<br /> <br />Delaney: Your story is so much like mine! I was on vino+herceptin after the liver mets was diagnosed. I've been in remission for 4 years. Glad to know that there are TDM-1 trials happening here, as it appears to be a wonder drug for some women. I hope it works it's magic on you - and quickly.<br />I actually haven't done anything other than post this - although I've been meaning to. Thanks for the kick in the pants. I'd also like to connect with you. You can email me: laurie dot kingston at gmail dot com.lauriehttps://www.blogger.com/profile/14533311678025418958noreply@blogger.comtag:blogger.com,1999:blog-20882588.post-80650817509968357212011-09-21T22:11:57.329-04:002011-09-21T22:11:57.329-04:00Laurie,
I would love to hear if/how you are involv...Laurie,<br />I would love to hear if/how you are involved in this issue! I'm also her2+, metastatic, and only continuing to receive herceptin because it is part of the trial I'm on (TDM-1 at Sunnybrook). I was previously on just herceptin after the initial chemo/herceptin combo wiped out my liver mets, but after almost 3 years, I recurred. Anyways, I did contact Rethink Breast Cancer about this very issue, knowing that if TDM-1 fails, I will be denied Herceptin again. I contacted them in the midst of the Jill Anzarut story, but they were very involved in that issue. I did receive several emails from them initially, but I've just neglected to get the ball rolling again. Anyways, I'd love to join the fight on this issue, let me know if you have any other thoughts! Otherwise, I will use the contact info from your blog post.<br />Delaney JanhunenDelaneynoreply@blogger.comtag:blogger.com,1999:blog-20882588.post-66108350426331495062011-09-21T15:21:14.814-04:002011-09-21T15:21:14.814-04:00this is so scary. ANd nonsensical. Are you going t...this is so scary. ANd nonsensical. Are you going to submit your story?Lene Andersenhttps://www.blogger.com/profile/11223128667829847717noreply@blogger.com